Whether you’ve been struggling with a chronic illness or you’ve made the break from the bad situation… …more than likely, you just want a place you can talk about what you’re facing and feel normal again. What could be better than a place where other such people congregate? It sounds […]
Coyote in Zebra Clothing
54 posts
From the outside looking in, interpersonal interactions of someone with a chronic illness or pain can look a bit unpredictable. Canceled plans at a moment’s notice, stretches of non-communication, sudden shifts in functionality, dazing out while you’re talking, or repeating their stories. While we often talk about the underlying cause […]
I am not friends with my lady parts, so fair warning that this post may be a bit on the crass side. I’ve been diagnosed with Polycyctic Ovarian Syndrome (PCOS) since 2000 and have recently learned it’s a very common comorbid syndrome with EDS. I could write a whole other […]
It seems that other than yoga, everyone has a magic diet fix for what ails you. It always comes across like snake oil salesmen too. “Oh, if you went vegan, you’d be healed in just a month! Just look at me! I went vegan, lost 50 pounds, my asthma went […]
What is a Comorbidity? When we’re talking about the term in a medical sense, it means when an additional disease or disorder is present at the same time as another. This is important because many in the medical world are taught to look for a single underlying cause. Think to […]
I’ve been going through a rough spot recently. I just got informed that my ankle that has been giving me problems will have to be surgically redone and the previous implant has already been taken out after a car wreck dislodged it. I’ve been subluxing my elbow, which is a […]
When you first start hearing about EDS (or other hard to diagnose conditions like Fibromyalgia), it is often said that getting a diagnosis takes several years. This is for a variety of reasons including, but not limited to, lack of knowledge about the rare syndrome, hesitation on a physicians part […]
The Irksome Thing About Being A Trauma Survivor… …is that it is surprisingly isolating. In an odd way it gives one some sense of what it is like to live in the closet in earlier years. We, as a culture, don’t even like to talk about trauma in an abstract […]
I have a high tolerance for internal pain. I don’t say this in boasting, because in all honestly its more of a hindrance than a benefit. I’ve worked through migraines and walked 200 yards to work on a dislocated hip. While this may spur thoughts of “Wow! You’re tough! That’s […]
Now before I get a flood of responses about how you need to go to a doctor, take a breath and read all of what I’ve got to say because I’ll be the first one to say that I fully appreciate every one of the doctors on my team and […]