I have been using my Silver Ring Splints for over 5 years now. This year, I had to add 8 more to my collection as my hands continue to degrade. I deeply appreciate their support as I have reached a point where I cannot write without them due to my […]
Coyote in Zebra Clothing
50 posts
I know not everyone is a Shakespeare fan, but bear with me for a moment. Whether ’tis nobler in the mind to sufferThe slings and arrows of outrageous fortune,Or to take arms against a sea of troublesAnd by opposing end them. To die—to sleep,No more; and by a sleep to […]
I know I’ve been a bit lax with the Ehlers-Danlos specific posts, and I promise, I will be getting back to them. Life apparently has had other plans with me as of late. But I always approach my writing with something I wish someone would have told me. This mindset, […]
I was gifted a very unexpected emotional rollercoaster of a journey early in the morning one day, so I wanted to pass that journey on to all of you. If you stay with it, I promise, it has an uplifting ending, but consider this your “Bad Feelings Ahead” trigger warning. […]
Thank the gods for speech to text in this moment. Friday, my hands started to get little tiny blisters on the joints. This is something I’m familiar with as dyshidrotic eczema. It can happen for any number of reasons and I’ve gotten to know (or thought I did) most of […]
It’s a very natural thing, when bad things happen, to ask “Why me?” We try to make sense of the chaos that can be Ehlers-Danlos (or other rare disorders). One evening, a friend of mine and I were discussing that frustration. I was having ankle complications that even one of […]
One of the most difficult lessons I’ve had to learn since being diagnosed with Ehlers-Danlos Syndrome (EDS), is to be patient and give myself ample time to rest after an injury. Part of this was a constant drive to push past pain to appear normal. The other part was facing […]
To cut to the chase, consider this your trigger warning, I’ve been sexually assaulted by someone who was assisting with post surgical care a number of months ago and that’s what this is about. While yes, I’ll be talking about my experience, only so much as to provide a stepping […]
A few ankle surgeries back, it was suggested that I look into Smart Crutches. I had seen them mentioned in EDS groups and I’ve got a zebra sister with them that loved them. I knew my hips and knees were not taking the knee scooter well and I needed to […]
This is a subject that turned into a major discussion with my therapist as well as those close to me. The way that I understood the idea of forgiveness, until this point, was to release the negative feelings and then be able to feel love towards the person and honestly […]