We’ll be slowly adding more links

Zebra Research

The Ehlers Danlos Society

A wonderful resource for Ehlers Danlos Syndrome and Hypermobile Spectrum Disorder

EDS Awareness

Another fantastic resource full of videos, articles, and a map of support networks

Dysautonomia International

International resource for those with Dysautonomia such as POTS

The Mastocytosis Society

An organization dedicated to the research of Mast Cell Disorders, including Mast Cell Activation Syndrom (MCAS) that is a common comorbid

My Pain IQ

A resource for people with Chronic Illness

Genes for Good

Free genetic testing done by the University of Michigan using a Facebook App and health surveys

The Mighty: Ehlers-Danlos Syndrome

A variety of articles that range from lists of helpful products to personal stories.

Zebra Cooking

Please not that we are not advising anyone to follow one particular diet. Please talk with your doctor about any dietary concerns!

The Baking Zebra

A fellow zebra that posts a collection of recipes that are often keto friendly, low carb, and gluten free!

Unbound Wellness

Michelle gives a ton of recipes that follow an Autoimmune Protocol or AIP

AIP Lifestyle

Jessica has worked as a clinical nutritionist for 17 years and provides a lot of recipes that follow an AIP

Nom Nom Paleo

Lots of relatively easy recipes for a paleo diet

Paleo Leap

Lots of recipes and filtered by type of cooking or main ingredient when it comes to meal planning

Ketogenic Diet for Beginners

Information for what a Ketogenic diet is and some basic information to get you started

Carbophobic

Not only a lot of really helpful recipes, but some information on the basics of a low-carb diet as well!

Skinnytaste

This website has a wide range of recipes. If you click on the “Special Diets” tab, you can filter them for your needs.

Zebra Devices & Shopping

Smart Crutches

These are wonderful for if you absolutely need crutches by your shoulders are unable the handle the pressure of normal crutches

Attractive sterling silver splints to help correct hyperextention of the fingers while allowing normal movement. Usually recommended to be ordered through your hand therapist or physician to ensure that you are properly sized and are receiving the needed model.

DigiSplints

Very similar to the link above but these folks are based in Canada!

Zebra Splints

Another website that creates ring splints but has a wider range of specific ring designs so you can personalize your look and materials a bit more. Does not require a prescription but sizing requirements are important!

Firefly Mobility

A motorized attachment for a wheelchair that is easy to use and portable.

Ehlers-Danlos Society Shop

Looking for some outerwear to show your stripes? The Ehlers-Danlos Society has a page where you can find a variety of things from hoodies to t-shirts and from mugs to tote bags.

Helpful Links