I have been using my Silver Ring Splints for over 5 years now. This year, I had to add 8 more to my collection as my hands continue to degrade. I deeply appreciate their support as I have reached a point where I cannot write without them due to my […]
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Depression Depression is a insidious disorder. Often you don’t know how bad it really is until something triggers such a reaction that you say “oh dear heavens, I want to die”. Depression and thoughts of death go hand in hand. Not always, but chances are if you’re thinking of your […]
I know not everyone is a Shakespeare fan, but bear with me for a moment. Whether ’tis nobler in the mind to sufferThe slings and arrows of outrageous fortune,Or to take arms against a sea of troublesAnd by opposing end them. To die—to sleep,No more; and by a sleep to […]
I know I’ve been a bit lax with the Ehlers-Danlos specific posts, and I promise, I will be getting back to them. Life apparently has had other plans with me as of late. But I always approach my writing with something I wish someone would have told me. This mindset, […]
I was gifted a very unexpected emotional rollercoaster of a journey early in the morning one day, so I wanted to pass that journey on to all of you. If you stay with it, I promise, it has an uplifting ending, but consider this your “Bad Feelings Ahead” trigger warning. […]
Be warned, this is a rant, but a rant full of science. To start, I am pro vaccine, and pro living my life to the best I can. I can’t believe that I’m still finding people who won’t get vaccinated against this pandemic that is COVID-19. The Delta variant (and […]
Thank the gods for speech to text in this moment. Friday, my hands started to get little tiny blisters on the joints. This is something I’m familiar with as dyshidrotic eczema. It can happen for any number of reasons and I’ve gotten to know (or thought I did) most of […]
Trauma. Often it is not one big wound but a tiny million little cuts that come from a myriad of unknown places, making healing just as layered, curious, and complex as the random triggers that are evoked (what I call, the ‘Little Earthquakes’). I liken trauma to dropping a glass. […]
Friendships when you have any illness, chronic or temporary, are hard. When it is a temporary illness, you can be forgiven for cancelling something. But when it is a chronic illness, forgiveness wanes over time. As we fight our bodies to do what we ask, often the simplest tasks become […]
You know those videos of injured runners at places like the Olympics? The ones where the runner refuses to quit, even though they’ve obviously hurt themselves badly? This video from the 1992 Olympics is the kind of thing I am thinking about: https://youtu.be/t2G8KVzTwfw Derek Redmond hurts himself, and he refuses […]