Blog

61 posts

Blame the Purple Cows

It’s a very natural thing, when bad things happen, to ask “Why me?” We try to make sense of the chaos that can be Ehlers-Danlos (or other rare disorders). One evening, a friend of mine and I were discussing that frustration. I was having ankle complications that even one of […]

When Doing Nothing Is Still Taking Action

One of the most difficult lessons I’ve had to learn since being diagnosed with Ehlers-Danlos Syndrome (EDS), is to be patient and give myself ample time to rest after an injury. Part of this was a constant drive to push past pain to appear normal. The other part was facing […]

When #MeToo Hits You Too

To cut to the chase, consider this your trigger warning, I’ve been sexually assaulted by someone who was assisting with post surgical care a number of months ago and that’s what this is about. While yes, I’ll be talking about my experience, only so much as to provide a stepping […]

Words of Hope from a Zebra Amidst the Coronavirus Quarantine

All around the world, folks are being asked to make sacrifices in their daily routines in order to help limit the spread of the novel coronavirus. To stay inside, not go to see friends and family, to avoid social gatherings, to go to church via online broadcast only. Intellectually, they […]

Suicidal Thoughts Aren’t Always Loud

Content Warning: May be a sensitive topic for some readers If you need immediate help, the number for the national suicide hotline is 1-800-273-8255 and they have a chat option on their website at https://suicidepreventionlifeline.org/ Suicidal thoughts are a major taboo subject, but we can’t even come close to helping […]