There are days when it’s difficult to exist because of pain and/or brain fog. It could be an acute issue like an elbow dislocated or it could be a long term complication like the stubborn granuloma that I’ve been facing for a while now mixed with a low level Chronic […]
Chronic Illness
38 posts
Not all families handle having a member with chronic illness in the best of ways. Unfortunately, from what I’ve seen in support groups, most seem to end up with the individual already struggling to feel more like an outcast. This seems especially true when you’ve got a disorder that’s rare […]
This is something that, until recent events, I didn’t realize I struggled with. What Is Imposter Syndrome? Simply put, it’s an internal feeling of not being as skilled or accomplished as others perceive you to be. Instead of feeling good about compliments that are given, you feel as if you’re […]
Whether you’ve been struggling with a chronic illness or you’ve made the break from the bad situation… …more than likely, you just want a place you can talk about what you’re facing and feel normal again. What could be better than a place where other such people congregate? It sounds […]
From the outside looking in, interpersonal interactions of someone with a chronic illness or pain can look a bit unpredictable. Canceled plans at a moment’s notice, stretches of non-communication, sudden shifts in functionality, dazing out while you’re talking, or repeating their stories. While we often talk about the underlying cause […]
It seems that other than yoga, everyone has a magic diet fix for what ails you. It always comes across like snake oil salesmen too. “Oh, if you went vegan, you’d be healed in just a month! Just look at me! I went vegan, lost 50 pounds, my asthma went […]
Neurologist appointment today, and oh did I have questions for her. The *dead* feeling in my right butt cheek, and radiating all the way down to my toes is making me insane! I cannot get away from it, I want to crawl out of my own skin. And my arms, […]
What is a Comorbidity? When we’re talking about the term in a medical sense, it means when an additional disease or disorder is present at the same time as another. This is important because many in the medical world are taught to look for a single underlying cause. Think to […]
I’ve been going through a rough spot recently. I just got informed that my ankle that has been giving me problems will have to be surgically redone and the previous implant has already been taken out after a car wreck dislodged it. I’ve been subluxing my elbow, which is a […]
When you first start hearing about EDS (or other hard to diagnose conditions like Fibromyalgia), it is often said that getting a diagnosis takes several years. This is for a variety of reasons including, but not limited to, lack of knowledge about the rare syndrome, hesitation on a physicians part […]