Be warned, this is a rant, but a rant full of science. To start, I am pro vaccine, and pro living my life to the best I can. I can’t believe that I’m still finding people who won’t get vaccinated against this pandemic that is COVID-19. The Delta variant (and […]
Guest Post
Trauma. Often it is not one big wound but a tiny million little cuts that come from a myriad of unknown places, making healing just as layered, curious, and complex as the random triggers that are evoked (what I call, the ‘Little Earthquakes’). I liken trauma to dropping a glass. […]
Friendships when you have any illness, chronic or temporary, are hard. When it is a temporary illness, you can be forgiven for cancelling something. But when it is a chronic illness, forgiveness wanes over time. As we fight our bodies to do what we ask, often the simplest tasks become […]
You know those videos of injured runners at places like the Olympics? The ones where the runner refuses to quit, even though they’ve obviously hurt themselves badly? This video from the 1992 Olympics is the kind of thing I am thinking about: https://youtu.be/t2G8KVzTwfw Derek Redmond hurts himself, and he refuses […]
So, Anxiety Zebras… After having the world’s stupidest period my whole life, I finally get a doctor who says “hey, PCOS” and doesn’t do anything. But, after a couple of years of my period playing with me (everyday, nada for months, then need transfusions) a good doctor repeats the PCOS bit […]
My home life is bad. Really bad and has been for most of my life. The happiest times have been when I’ve lived far away from family. My innate conscious and deep spiritual roots have not allowed me to ignore the needs of generational caregiving crossing four generations and branching […]
Neurologist appointment today, and oh did I have questions for her. The *dead* feeling in my right butt cheek, and radiating all the way down to my toes is making me insane! I cannot get away from it, I want to crawl out of my own skin. And my arms, […]
The path to a definitive diagnosis of EDS is a highly personal one. Each of us has a unique story to tell, filled with both heart aches, and triumphs. I would like to share with you my journey on the long road to find answers. For me, as a child […]
The Irksome Thing About Being A Trauma Survivor… …is that it is surprisingly isolating. In an odd way it gives one some sense of what it is like to live in the closet in earlier years. We, as a culture, don’t even like to talk about trauma in an abstract […]
So, I was diagnosed with fibromyalgia when I was in my early 20s. I was showing symptoms long before that. And I had chronic pneumonia from my childhood, on top of asthma, ADHD, and depression. I was working for a company that had me commuting roughly 10 hours a day, […]