First of all, let me explain what I mean by the term mystical woo. I don’t belong to an abrahamic faith. I don’t exactly fit in a box either, but I suppose you could call me pagan and it would be technically accurate…kind of. However, I may be one of […]
hEDS and HMS
28 posts
Just about every day, I put 10 double rings and a ring with a silver plate on my hands. They’re made of sterling silver and customized to fit my fingers. I often get compliments of how elegant and classy they look. But truth be told, as pretty as they are, […]
Seems I am delving into some of the more difficult subjects lately. While I know what I’m about to approach is an important subject, this is not an easy thing for me to do. As I’ve said in past posts, my whole goal is for people not to feel so […]
There are days when it’s difficult to exist because of pain and/or brain fog. It could be an acute issue like an elbow dislocated or it could be a long term complication like the stubborn granuloma that I’ve been facing for a while now mixed with a low level Chronic […]
Not all families handle having a member with chronic illness in the best of ways. Unfortunately, from what I’ve seen in support groups, most seem to end up with the individual already struggling to feel more like an outcast. This seems especially true when you’ve got a disorder that’s rare […]
This is something that, until recent events, I didn’t realize I struggled with. What Is Imposter Syndrome? Simply put, it’s an internal feeling of not being as skilled or accomplished as others perceive you to be. Instead of feeling good about compliments that are given, you feel as if you’re […]
It seems that other than yoga, everyone has a magic diet fix for what ails you. It always comes across like snake oil salesmen too. “Oh, if you went vegan, you’d be healed in just a month! Just look at me! I went vegan, lost 50 pounds, my asthma went […]
Neurologist appointment today, and oh did I have questions for her. The *dead* feeling in my right butt cheek, and radiating all the way down to my toes is making me insane! I cannot get away from it, I want to crawl out of my own skin. And my arms, […]
The path to a definitive diagnosis of EDS is a highly personal one. Each of us has a unique story to tell, filled with both heart aches, and triumphs. I would like to share with you my journey on the long road to find answers. For me, as a child […]
What is a Comorbidity? When we’re talking about the term in a medical sense, it means when an additional disease or disorder is present at the same time as another. This is important because many in the medical world are taught to look for a single underlying cause. Think to […]