We’ll be slowly adding more links
Zebra Research
The Ehlers Danlos Society
A wonderful resource for Ehlers Danlos Syndrome and Hypermobile Spectrum Disorder
EDS Awareness
Another fantastic resource full of videos, articles, and a map of support networks
Dysautonomia International
International resource for those with Dysautonomia such as POTS
The Mastocytosis Society
An organization dedicated to the research of Mast Cell Disorders, including Mast Cell Activation Syndrom (MCAS) that is a common comorbid
My Pain IQ
A resource for people with Chronic Illness
Genes for Good
Free genetic testing done by the University of Michigan using a Facebook App and health surveys
The Mighty: Ehlers-Danlos Syndrome
A variety of articles that range from lists of helpful products to personal stories.
Zebra Cooking
Please not that we are not advising anyone to follow one particular diet. Please talk with your doctor about any dietary concerns!
The Baking Zebra
A fellow zebra that posts a collection of recipes that are often keto friendly, low carb, and gluten free!
Unbound Wellness
Michelle gives a ton of recipes that follow an Autoimmune Protocol or AIP
AIP Lifestyle
Jessica has worked as a clinical nutritionist for 17 years and provides a lot of recipes that follow an AIP
Nom Nom Paleo
Lots of relatively easy recipes for a paleo diet
Paleo Leap
Lots of recipes and filtered by type of cooking or main ingredient when it comes to meal planning
Ketogenic Diet for Beginners
Information for what a Ketogenic diet is and some basic information to get you started
Carbophobic
Not only a lot of really helpful recipes, but some information on the basics of a low-carb diet as well!
Skinnytaste
This website has a wide range of recipes. If you click on the “Special Diets” tab, you can filter them for your needs.
Zebra Devices & Shopping
Smart Crutches
These are wonderful for if you absolutely need crutches by your shoulders are unable the handle the pressure of normal crutches
Silver Ring Splints
Attractive sterling silver splints to help correct hyperextention of the fingers while allowing normal movement. Usually recommended to be ordered through your hand therapist or physician to ensure that you are properly sized and are receiving the needed model.
DigiSplints
Very similar to the link above but these folks are based in Canada!
Firefly Mobility
A motorized attachment for a wheelchair that is easy to use and portable.
Ehlers-Danlos Society Shop
Looking for some outerwear to show your stripes? The Ehlers-Danlos Society has a page where you can find a variety of things from hoodies to t-shirts and from mugs to tote bags.
Zebra Pages by Other Zebras
Oh TWIST
She writes about a variety of topics from EDS to Autism to MCAD
My Stripy Life
Writings about EDS and CMT
Less Flexible
Blog about the adventures of an EDS woman wishing that she was Less Flexible
Strength/Flexability/Health/EDS
The Wanderful Life
Full-time camper living, hiking, sustainability, and handling the challenges of this wanderful life with Ehlers Danlos
Flying Through It
A journal of my physical and emotional journey to stay fit and healthy despite being diagnosed with Ehlers-Danlos Syndrome.
Not Your Average Zebra
Wonderful woman with a YouTube channel dedicated to her journey
Breathe In, Breathe Out
Christian woman that shares her journey with Anxiety, Depression, and more