Thank the gods for speech to text in this moment. Friday, my hands started to get little tiny blisters on the joints. This is something I’m familiar with as dyshidrotic eczema. It can happen for any number of reasons and I’ve gotten to know (or thought I did) most of […]
chronic illness with doctors
5 posts
The path to a definitive diagnosis of EDS is a highly personal one. Each of us has a unique story to tell, filled with both heart aches, and triumphs. I would like to share with you my journey on the long road to find answers. For me, as a child […]
When you first start hearing about EDS (or other hard to diagnose conditions like Fibromyalgia), it is often said that getting a diagnosis takes several years. This is for a variety of reasons including, but not limited to, lack of knowledge about the rare syndrome, hesitation on a physicians part […]
Now before I get a flood of responses about how you need to go to a doctor, take a breath and read all of what I’ve got to say because I’ll be the first one to say that I fully appreciate every one of the doctors on my team and […]
When you’re stepping into the world of chronic illness, a diagnosis isn’t always an easy thing. First, you’ve got the process of getting diagnosed. This isn’t the same as figuring out if you’ve got an infection; take a culture and get the results back in a few days. While some […]