Not all families handle having a member with chronic illness in the best of ways. Unfortunately, from what I’ve seen in support groups, most seem to end up with the individual already struggling to feel more like an outcast. This seems especially true when you’ve got a disorder that’s rare […]
emotional support
Whether you’ve been struggling with a chronic illness or you’ve made the break from the bad situation… …more than likely, you just want a place you can talk about what you’re facing and feel normal again. What could be better than a place where other such people congregate? It sounds […]
It seems that other than yoga, everyone has a magic diet fix for what ails you. It always comes across like snake oil salesmen too. “Oh, if you went vegan, you’d be healed in just a month! Just look at me! I went vegan, lost 50 pounds, my asthma went […]
I’ve been going through a rough spot recently. I just got informed that my ankle that has been giving me problems will have to be surgically redone and the previous implant has already been taken out after a car wreck dislodged it. I’ve been subluxing my elbow, which is a […]
When you first start hearing about EDS (or other hard to diagnose conditions like Fibromyalgia), it is often said that getting a diagnosis takes several years. This is for a variety of reasons including, but not limited to, lack of knowledge about the rare syndrome, hesitation on a physicians part […]
The Irksome Thing About Being A Trauma Survivor… …is that it is surprisingly isolating. In an odd way it gives one some sense of what it is like to live in the closet in earlier years. We, as a culture, don’t even like to talk about trauma in an abstract […]
So, I was diagnosed with fibromyalgia when I was in my early 20s. I was showing symptoms long before that. And I had chronic pneumonia from my childhood, on top of asthma, ADHD, and depression. I was working for a company that had me commuting roughly 10 hours a day, […]
Best friends is not exactly a term often heard when discussing ones mental illness, but it’s true for mine. The two of them are near inseparable. They’re like two old women who go to the hairdressers mainly to gossip or the old conspiracy theorist that everyone tries to avoid so […]
I’ve been told this a lot recently I just had my second major surgery. It went well and though it was only a week ago, I can tell it’s healing pretty good thus far. The surgery prep was less than phenomenal, though it wasn’t the fault of a bad nursing […]
“OMG, why do you talk about your medical problems so often?” I’ve had this conversation, as well as overheard this conversation, recently… “No, seriously. It’s like you’re always talking about it. Your rings, your surgery, your doctors, your diagnosis, your pain. On and on and on and on to everyone!” […]