This is a subject that turned into a major discussion with my therapist as well as those close to me. The way that I understood the idea of forgiveness, until this point, was to release the negative feelings and then be able to feel love towards the person and honestly […]
talking with doctors
So, Anxiety Zebras… After having the world’s stupidest period my whole life, I finally get a doctor who says “hey, PCOS” and doesn’t do anything. But, after a couple of years of my period playing with me (everyday, nada for months, then need transfusions) a good doctor repeats the PCOS bit […]
I’m not going to lie, the reason that I first started this article was so I didn’t scream at the next person that said “OOOOOOOO, I’m going to tell your surgeon you’re doing that!” when they saw me walking. To their credit, I have a bit of a unique complication […]
When I first started this site, I wrote about the EDS specific surgery I got for my ankles. Before I continue here, I want to be very clear that I in no way regret getting the surgeries and I will still, if your doctor suggests it, recommend it in a […]
Neurologist appointment today, and oh did I have questions for her. The *dead* feeling in my right butt cheek, and radiating all the way down to my toes is making me insane! I cannot get away from it, I want to crawl out of my own skin. And my arms, […]
The path to a definitive diagnosis of EDS is a highly personal one. Each of us has a unique story to tell, filled with both heart aches, and triumphs. I would like to share with you my journey on the long road to find answers. For me, as a child […]
I have a high tolerance for internal pain. I don’t say this in boasting, because in all honestly its more of a hindrance than a benefit. I’ve worked through migraines and walked 200 yards to work on a dislocated hip. While this may spur thoughts of “Wow! You’re tough! That’s […]
Now before I get a flood of responses about how you need to go to a doctor, take a breath and read all of what I’ve got to say because I’ll be the first one to say that I fully appreciate every one of the doctors on my team and […]
Most with chronic illness (and even those going through an acute issue) have all had that well-meaning person offer their suggestion that goes a bit like this: Have you tried talking with your body? It’s only trying to communicate with you. If you learned to talk to your body in […]
I recently chose to go on antidepressants for the first time since I was 17. I fought long and hard to avoid going back on them, but I forgot one major thing during that fight. That medication to help your mental health isn’t a mark of failure. Let me repeat […]