Or, A Journey Guided by a Phoenix Spirit Over the past year, an incredible bit of collaboration has been brewing. On the surface, it presents as the culmination of being able to release a new EDS ring splint. This is an exciting enough announcement, but allow me to take you […]
Coyote in Zebra Clothing
54 posts
Alternative Title: Why “Inspiration P*rn” Hurts The Chronic Illness Community Disability and admitting that one is disabled should not be a social faux pas. Everyone is fully able-bodied temporarily. Whether it ends in a sudden accident or the slow creep of life, we’ll all face it in some way. Many […]
I haven’t written here in a long time. There’s been surgery on both my elbows to release and stabilize a dislocating ulnar nerve. My mast cells have flared and there was a bit of a spiral when prednisone caused a mild anaphylaxis. The unexpected “fun” result of that? New and […]
Momma, don’t let your kids grow up to be cowboys…afraid of feeling I grew up in an environment where anger was not acceptable. The oldest of 3, I was not to get angry at the younger siblings, I should be understanding and lead by example. I shouldn’t get angry at […]
I have been using my Silver Ring Splints for over 5 years now. This year, I had to add 8 more to my collection as my hands continue to degrade. I deeply appreciate their support as I have reached a point where I cannot write without them due to my […]
I know not everyone is a Shakespeare fan, but bear with me for a moment. Whether ’tis nobler in the mind to sufferThe slings and arrows of outrageous fortune,Or to take arms against a sea of troublesAnd by opposing end them. To die—to sleep,No more; and by a sleep to […]
I know I’ve been a bit lax with the Ehlers-Danlos specific posts, and I promise, I will be getting back to them. Life apparently has had other plans with me as of late. But I always approach my writing with something I wish someone would have told me. This mindset, […]
I was gifted a very unexpected emotional rollercoaster of a journey early in the morning one day, so I wanted to pass that journey on to all of you. If you stay with it, I promise, it has an uplifting ending, but consider this your “Bad Feelings Ahead” trigger warning. […]
Thank the gods for speech to text in this moment. Friday, my hands started to get little tiny blisters on the joints. This is something I’m familiar with as dyshidrotic eczema. It can happen for any number of reasons and I’ve gotten to know (or thought I did) most of […]
It’s a very natural thing, when bad things happen, to ask “Why me?” We try to make sense of the chaos that can be Ehlers-Danlos (or other rare disorders). One evening, a friend of mine and I were discussing that frustration. I was having ankle complications that even one of […]