Or, A Journey Guided by a Phoenix Spirit Over the past year, an incredible bit of collaboration has been brewing. On the surface, it presents as the culmination of being able to release a new EDS ring splint. This is an exciting enough announcement, but allow me to take you […]
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Alternative Title: Why “Inspiration P*rn” Hurts The Chronic Illness Community Disability and admitting that one is disabled should not be a social faux pas. Everyone is fully able-bodied temporarily. Whether it ends in a sudden accident or the slow creep of life, we’ll all face it in some way. Many […]
I haven’t written here in a long time. There’s been surgery on both my elbows to release and stabilize a dislocating ulnar nerve. My mast cells have flared and there was a bit of a spiral when prednisone caused a mild anaphylaxis. The unexpected “fun” result of that? New and […]
Momma, don’t let your kids grow up to be cowboys…afraid of feeling I grew up in an environment where anger was not acceptable. The oldest of 3, I was not to get angry at the younger siblings, I should be understanding and lead by example. I shouldn’t get angry at […]
I have been using my Silver Ring Splints for over 5 years now. This year, I had to add 8 more to my collection as my hands continue to degrade. I deeply appreciate their support as I have reached a point where I cannot write without them due to my […]
Depression Depression is a insidious disorder. Often you don’t know how bad it really is until something triggers such a reaction that you say “oh dear heavens, I want to die”. Depression and thoughts of death go hand in hand. Not always, but chances are if you’re thinking of your […]
I know not everyone is a Shakespeare fan, but bear with me for a moment. Whether ’tis nobler in the mind to sufferThe slings and arrows of outrageous fortune,Or to take arms against a sea of troublesAnd by opposing end them. To die—to sleep,No more; and by a sleep to […]
I know I’ve been a bit lax with the Ehlers-Danlos specific posts, and I promise, I will be getting back to them. Life apparently has had other plans with me as of late. But I always approach my writing with something I wish someone would have told me. This mindset, […]
I was gifted a very unexpected emotional rollercoaster of a journey early in the morning one day, so I wanted to pass that journey on to all of you. If you stay with it, I promise, it has an uplifting ending, but consider this your “Bad Feelings Ahead” trigger warning. […]
Be warned, this is a rant, but a rant full of science. To start, I am pro vaccine, and pro living my life to the best I can. I can’t believe that I’m still finding people who won’t get vaccinated against this pandemic that is COVID-19. The Delta variant (and […]