I have been using my Silver Ring Splints for over 5 years now. This year, I had to add 8 more to my collection as my hands continue to degrade. I deeply appreciate their support as I have reached a point where I cannot write without them due to my […]
Chronic Illness
38 posts
I know not everyone is a Shakespeare fan, but bear with me for a moment. Whether ’tis nobler in the mind to sufferThe slings and arrows of outrageous fortune,Or to take arms against a sea of troublesAnd by opposing end them. To die—to sleep,No more; and by a sleep to […]
I was gifted a very unexpected emotional rollercoaster of a journey early in the morning one day, so I wanted to pass that journey on to all of you. If you stay with it, I promise, it has an uplifting ending, but consider this your “Bad Feelings Ahead” trigger warning. […]
Be warned, this is a rant, but a rant full of science. To start, I am pro vaccine, and pro living my life to the best I can. I can’t believe that I’m still finding people who won’t get vaccinated against this pandemic that is COVID-19. The Delta variant (and […]
Thank the gods for speech to text in this moment. Friday, my hands started to get little tiny blisters on the joints. This is something I’m familiar with as dyshidrotic eczema. It can happen for any number of reasons and I’ve gotten to know (or thought I did) most of […]
Friendships when you have any illness, chronic or temporary, are hard. When it is a temporary illness, you can be forgiven for cancelling something. But when it is a chronic illness, forgiveness wanes over time. As we fight our bodies to do what we ask, often the simplest tasks become […]
It’s a very natural thing, when bad things happen, to ask “Why me?” We try to make sense of the chaos that can be Ehlers-Danlos (or other rare disorders). One evening, a friend of mine and I were discussing that frustration. I was having ankle complications that even one of […]
One of the most difficult lessons I’ve had to learn since being diagnosed with Ehlers-Danlos Syndrome (EDS), is to be patient and give myself ample time to rest after an injury. Part of this was a constant drive to push past pain to appear normal. The other part was facing […]
A few ankle surgeries back, it was suggested that I look into Smart Crutches. I had seen them mentioned in EDS groups and I’ve got a zebra sister with them that loved them. I knew my hips and knees were not taking the knee scooter well and I needed to […]
All around the world, folks are being asked to make sacrifices in their daily routines in order to help limit the spread of the novel coronavirus. To stay inside, not go to see friends and family, to avoid social gatherings, to go to church via online broadcast only. Intellectually, they […]