Yearly Archives: 2021

9 posts

Thoughts on Love, Trauma, & Fear

I was gifted a very unexpected emotional rollercoaster of a journey early in the morning one day, so I wanted to pass that journey on to all of you. If you stay with it, I promise, it has an uplifting ending, but consider this your “Bad Feelings Ahead” trigger warning. […]

The Frustration of a Mast Cell Flare

Thank the gods for speech to text in this moment. Friday, my hands started to get little tiny blisters on the joints. This is something I’m familiar with as dyshidrotic eczema. It can happen for any number of reasons and I’ve gotten to know (or thought I did) most of […]

Blame the Purple Cows

It’s a very natural thing, when bad things happen, to ask “Why me?” We try to make sense of the chaos that can be Ehlers-Danlos (or other rare disorders). One evening, a friend of mine and I were discussing that frustration. I was having ankle complications that even one of […]

When Doing Nothing Is Still Taking Action

One of the most difficult lessons I’ve had to learn since being diagnosed with Ehlers-Danlos Syndrome (EDS), is to be patient and give myself ample time to rest after an injury. Part of this was a constant drive to push past pain to appear normal. The other part was facing […]

When #MeToo Hits You Too

To cut to the chase, consider this your trigger warning, I’ve been sexually assaulted by someone who was assisting with post surgical care a number of months ago and that’s what this is about. While yes, I’ll be talking about my experience, only so much as to provide a stepping […]