It’s a very natural thing, when bad things happen, to ask “Why me?” We try to make sense of the chaos that can be Ehlers-Danlos (or other rare disorders). One evening, a friend of mine and I were discussing that frustration. I was having ankle complications that even one of […]
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One of the most difficult lessons I’ve had to learn since being diagnosed with Ehlers-Danlos Syndrome (EDS), is to be patient and give myself ample time to rest after an injury. Part of this was a constant drive to push past pain to appear normal. The other part was facing […]
To cut to the chase, consider this your trigger warning, I’ve been sexually assaulted by someone who was assisting with post surgical care a number of months ago and that’s what this is about. While yes, I’ll be talking about my experience, only so much as to provide a stepping […]
A few ankle surgeries back, it was suggested that I look into Smart Crutches. I had seen them mentioned in EDS groups and I’ve got a zebra sister with them that loved them. I knew my hips and knees were not taking the knee scooter well and I needed to […]
This is a subject that turned into a major discussion with my therapist as well as those close to me. The way that I understood the idea of forgiveness, until this point, was to release the negative feelings and then be able to feel love towards the person and honestly […]
All around the world, folks are being asked to make sacrifices in their daily routines in order to help limit the spread of the novel coronavirus. To stay inside, not go to see friends and family, to avoid social gatherings, to go to church via online broadcast only. Intellectually, they […]
We’ve had some really intense weather shifts that have left me wanting to crawl in bed and stay there. Even as I type this, I feel an intense pressure at the back of my skull, my left hip is grinding every time I shift my weight, my right foot just […]
Content Warning: May be a sensitive topic for some readers If you need immediate help, the number for the national suicide hotline is 1-800-273-8255 and they have a chat option on their website at https://suicidepreventionlifeline.org/ Suicidal thoughts are a major taboo subject, but we can’t even come close to helping […]
I’m not going to lie, the reason that I first started this article was so I didn’t scream at the next person that said “OOOOOOOO, I’m going to tell your surgeon you’re doing that!” when they saw me walking. To their credit, I have a bit of a unique complication […]
When I first started this site, I wrote about the EDS specific surgery I got for my ankles. Before I continue here, I want to be very clear that I in no way regret getting the surgeries and I will still, if your doctor suggests it, recommend it in a […]