Thank the gods for speech to text in this moment. Friday, my hands started to get little tiny blisters on the joints. This is something I’m familiar with as dyshidrotic eczema. It can happen for any number of reasons and I’ve gotten to know (or thought I did) most of […]
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Trauma. Often it is not one big wound but a tiny million little cuts that come from a myriad of unknown places, making healing just as layered, curious, and complex as the random triggers that are evoked (what I call, the ‘Little Earthquakes’). I liken trauma to dropping a glass. […]
Friendships when you have any illness, chronic or temporary, are hard. When it is a temporary illness, you can be forgiven for cancelling something. But when it is a chronic illness, forgiveness wanes over time. As we fight our bodies to do what we ask, often the simplest tasks become […]
You know those videos of injured runners at places like the Olympics? The ones where the runner refuses to quit, even though they’ve obviously hurt themselves badly? This video from the 1992 Olympics is the kind of thing I am thinking about: https://youtu.be/t2G8KVzTwfw Derek Redmond hurts himself, and he refuses […]
It’s a very natural thing, when bad things happen, to ask “Why me?” We try to make sense of the chaos that can be Ehlers-Danlos (or other rare disorders). One evening, a friend of mine and I were discussing that frustration. I was having ankle complications that even one of […]
One of the most difficult lessons I’ve had to learn since being diagnosed with Ehlers-Danlos Syndrome (EDS), is to be patient and give myself ample time to rest after an injury. Part of this was a constant drive to push past pain to appear normal. The other part was facing […]
To cut to the chase, consider this your trigger warning, I’ve been sexually assaulted by someone who was assisting with post surgical care a number of months ago and that’s what this is about. While yes, I’ll be talking about my experience, only so much as to provide a stepping […]
A few ankle surgeries back, it was suggested that I look into Smart Crutches. I had seen them mentioned in EDS groups and I’ve got a zebra sister with them that loved them. I knew my hips and knees were not taking the knee scooter well and I needed to […]
This is a subject that turned into a major discussion with my therapist as well as those close to me. The way that I understood the idea of forgiveness, until this point, was to release the negative feelings and then be able to feel love towards the person and honestly […]
All around the world, folks are being asked to make sacrifices in their daily routines in order to help limit the spread of the novel coronavirus. To stay inside, not go to see friends and family, to avoid social gatherings, to go to church via online broadcast only. Intellectually, they […]